These are website resources and Facebook groups. Many authors have their own groups as well, so if you find an author that really helps you, going to their website will guide you to their support page, if they have one. Many are closed groups, all you have to do is ask to join.
By being closed they can maintain member privacy.
Melissa Phipps Head over to my page!
I share my thoughts on books I’m reading on topics of autoimmunity, brain inflammation, thyroid disease, PANS/PANDAS research and more! I also share scripture that encourages me and information as I find it. You are welcome to comment and share and I look forward to meeting you!
This is the best place to start for help with PANS and PANDAS. There are informative PDF downloads you can print at home to take to your doctor or to the your child’s school. You will find tons of information on all aspects of this illness and how to best learn an advocate for the PANDA in your life.
PANS/PANDAS Parents: VA&NC
Fantastic support group! As I warn further down, this group goes over serious and intense symptomology. Some parents share intense situations that feel very helpless and need to be heard. If certain topics are triggering to you be aware before you go on that this page, while very informative, can also be hard to scroll through on a particularly difficult day.
Another fantastic group with very knowledgeable members in a clam and supportive environment. As above some parents share intense situations that feel very helpless and need to be heard. If certain topics are triggering to you be aware before you go on that this page, while very informative, can also be hard to scroll through on a particularly difficult day.
PANS/PANDAS Parent Support
Really great questions come up in this group. A good place to ask questions and get lots of feedback. Big group! Be sure to be in a good headspace when you jump on as many tough questions from suffering parents and kids are asked here. But amazing responses of direction and hope are replied!